Saturday, June 29, 2013

Happy Summer!!! has been awhile. It has been a crazy 6 months! I can't believe it has been so long! Let's catch up...

Me- I have been sick. And all of that nonsense. Let's summarize. They (a team of doctors) feel that what is wrong with me is neurological. Appointment with a neurologist in July. The past months have been a blur of tests, doctors, appointments and the rest. Let's move on...
FUN stuff- I ran (walked) my first 5K! It was the color me rad and was so much fun. I can't run so Scott stayed with me and walked it. My sisters and other family ran it. We may take the kids next year it was so fun! I finished up my school year. I have developed a love/hate relationship with candy crush.

Scott- He is now shaving his head. And he still loves his job. And he is awesome dad and husband. Takes care of us all. I have sucked him into candy crush as well.

Will- GOING into 4th grade? When did all this happen. That little bugger is gaining on me in height! He loves swimming in the summer. His new obsession is Sonic the Hedgehog game. Is an excellent helper with taking care of his little brother. He got all A's in third grade. Loves reading Diary of a Wimpy kid.
Top left- singing at VBS

Rachel- Sooooo much like me. My dad would be so proud. Nailpoish and dressing up still fills her days. She has her own desk where she loves to create. She won an art award and had her work published for the 2nd year in a row.

Luke- Has discovered he can climb up the walls, pipes, doorways. He is my non-stop boy. Still loves spiderman. Finished Kindergarten with flying colors. Commendable in everything. Reading and writing like a champ.

Bella- Gets funnier every single day. Honestly, you must have a conversation with the girl. I call her and Will the twins as they are quite similar. She has turned into quite the girlly girl and follows in her sisters footsteps. Already have had fights about sharing clothes and the rest.

Nick- One,  people. My BABY turned one. He is my little cuddle bug. A fantastic sleeper! Big brown eyes and looks like a little clone of his big brother Luke. Hates to sit still. Climbs over everything. Looks like he could be Luke's partner in crime.

The past year has been difficult to say the least but we are pressing on. We have camping trips and a trip to the BEACH! (my fav place) We are hanging in the yard and eating Popsicles. Who doesn't  love summer?

Saturday, January 19, 2013

an update to an update seems that the hospital I had originally scheduled my test for doesn't really do THAT test. They only do part of it. As I sit in the blood draw chair after having fasted for hours and waiting for all of this to be over. After many "I am so sorry" and instructions to call other area hospitals to see who DOES do the test, I was left standing on the sidewalk with my husband. Not sure if it was time to cry or scream. I decided to treat myself to a muffin top and an ice coffee. Which I paid dearly for later but seemed like an appropriate response at the time.

I called around and of course no local hospital does the test. I had to schedule it for Pittsburgh. 2 weeks later. Now that I cried about. It is not the best thing, this being chronically ill. I just wish I had a name to put beside what it plaguing me. Maybe then I would be ok.

Not ok, perhaps in "I can eat what I want and be fine way." But in the way where I could give myself a break. Where I could stop wondering what exactly is wrong inside of me. Where I can stop wondering about the future. Where I could find a treatment that actually helps me.

I am now one week out from my test. This doesn't guarantee me much either. Another shot in the dark. But I had to leave work on Thursday because of the pain. I went to my moms. To take my pills and sleep. To cry into my pillow and wait. Of course mom let me sleep and watched the 2 babies. My other big ones got of the bus and soon after I was ok and we headed home.

When I was waiting for Scott to get there my phone rang. A woman I work with called to see how I was. She told me she had left something outside of my house for me. After we hung up, I went to get it. A beautiful card and gift. Telling me how everyone was praying for me and thinking of me. I can't say how touched I was. Tearing up I called my mom and then Scott to tell them how blessed I am to work where I do. To have the kind of friends there that I do. People who stand beside you and truly want to offer help when you need it.

Today, Saturday morning, I slept in. When the baby got up I went to get him. I brought him to my bed where Miss Bella had already spent most of the night. We laughed and played. Soon Luke came in and the other three trailed soon after. We talked and played. They started up their video game and I played hide and seek with the baby. This morning I was thankful.

If anything this mess has taught me, it is to be thankful for today. To look for reasons to be thankful and happy. I know we have seen the message "Today is a gift" a thousand times. But it is true. What you are given today is really a gift! Things in your life are amazing if you look. I woke up this morning. And I wasn't sick. I slept through the night. My husband went to the dollar store to buy dishwasher stuff and brought me back chocolate. Life is good. Really good.

I need to remember and focus on that. That in all the messiness of it all, life it truly a gift. The good and the bad. Even when the bad teaches us to reach outside ourselves for help and comforting. I am blessed.

If you would, say a prayer for Friday. That perhaps this test may pinpoint the issue. That the drive there will be managable. That my husband would get some rest. That my mom and sisters wouldn't worry so much! Prayers for health and happiness to all of my friends and family praying for me. I do appriciate it more than words could say.

Sunday, January 13, 2013

An update...of sorts

The last time we spoke it was the middle of December. So let me say I hope you had a Merry Christmas and a very Happy New Year!

Such a busy time here in Demi-land. I have thought about so much and wanted to write, and yet the time as slipped by. Health has not been that good and I wanted to write an update for all of my dear friends and family who have been thinking of me.

I say an update of sorts because I am not really sure on what to say. The month of December I found my stomach issues rapidly deteriorating. By the end of the December I was not eating. This has led to some other complications. I am now in the middle of some tests and in contacts with my specialist where I hope to someday soon find some answers. At the moment, I try to day by day eat what I can and do what I can.

I also am so blessed. As I chatted with one of my best friends today, I told her how humbled I am by all those who care and love me. My family who goes above and beyond with helping me out. My dear friends I work with always stopping in to check on me and see if I need anything.

Tomorrow morning I have another test. I hope something comes of it. But I rest easy knowing that I am always in the palm of Jesus. He is faithful. Thank-you for all of the thoughts, cards, prayers, meals, and kindness. I will be forever grateful.